Monday, October 15, 2012

Stabismic Amblyopia update

So last week we had another check up. And because of the results I'm going to explain this as best I can, as if I'm talking to others whom have children going thru visual therapy because, honestly, there's not alot of information out there on this and so each one of us who walks thru this with our children walks not knowing what to expect.
It's scary, expensive, frustrating, and there are so many questions that aren't answered.
And, if you're like me, and was struggling every day while diseases killed you via your thyroid and you got frustrated because they had cancelled you twice and you lost your temper slightly and thus you made them mad at you .....you get even less answers or explanations because then they view you as "the difficult one".
Nice. Well, I DID learn a lesson for sure.
I was crazy struggling in my own body ok?! Moving on.

Charlie Brown's vision has gotten worse by several focus lines/points/I don't know the official term. He's getting headaches and his eyes hurt regularly (proly the hardest part of the whole visual therapy thus far for a mother watching him hurt or struggle).
THIS IS NORMAL. 
I didn't understand either at first but let me explain.
His Strabmismus is IMPROVING and his eyes are connecting more and more. They even connected for the most of the eye exam, and then the right one (bad one) would spasm and disconnect for a bit and then reconnect again. The Dr saw this herself and the techs are seeing it as well every week during the therapy appointments.
THIS IS EXCELLENT.

So. Why is his vision worse right now then?
Well, since they are connecting they are learning to work together. Up until now his right eye is used to giving in and going blurry, and his left eye is used to taking over and seeing everything for both. Making them learn to work together takes just that...work. Each eye and his brain alike are having to relearn how to see, just like a baby. They are retraining themselves.
THE PLAN
For now. We push thru. This is the hardest part of visual therapy or so the Dr said. And it takes some tough love and tylenol I'm told. Once he get's past this part it all get's so much easier and then it's all better. But, for now we just have to keep working, keep training his eyes, and doing what we are doing. For now, we learn persistence and diligence.

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